Recently, during a business trip to Thiruvalla in Kerala, I visited an orphanage, which is a house of some 300 children. The kids were of different ages spanning from newborn to teenage. One thing was common among these children, they all were suffering from rare diseases. To my surprise caretaker was not even aware that these are genetic disorders and many of them can be cured or managed.
We tried to explain her but she was resistant to accept it. Instead, they feel that these kids are supposedly cursed and that’s why families leave them in God’s hand. I am sure many of them die due to lack of timely medical help.